Wednesday, February 11, 2015

Happy Birthday Dizzle and Moose!!

Dizzle asked for his first friends party this year. We decided to let him and soon plans were underway for a Lego party at Playland. We included this as Moose's party since all the Grandparent's joined as us well. We will celebrate one more time with a trip to Uncle Jas and Auntie Meg's so that we can enjoy some fun at Chuck E. Cheese as well! He had lots of friends there...22 kids in total. The kids had a lot of fun and everyone was so well behaved!! The only times I had to blow my whistle was to get their attention!! Enjoy the pictures below of all the party fun!

I hope he knows...

On the morning of January 25th I was awakened by T having a seizure. I was thankful that God was watching over him and the details of the seizure so that the awful wasn't worse! T came into our room during the night and told me he had a bad dream. He never sleeps in our bed but he insisted so Joshua and T switched beds. A few hours later a felt the covers pull off of me and realized Trenton had fell out of bed. I started talking to him but realized quickly that he wasn't responding. It was then that I saw him having a full blown seizure. This wasn't his normal seizure...this was a grand mal seizure All my "on the job training" kicked in and I timed it, stayed calm, and did what I could to make sure he was comfortable. After what seemed like hours but in reality only a minute, it stopped. T didn't know what had happened and he was very upset. His whole body was paralyzed which is typical for him. After he fell back asleep, I tried to process what happened. I still don't know what to think or what the next step should be. All I know is that resetting the seizure clock back to zero after 2 years is a difficult thing to do! Over the last few weeks all of these thoughts tumble through my head. I thought I would give you just a taste of the thoughts tumbling around my head these days.

When I make him take his medicine when he doesn't want to, I hope he knows that we have researched countless medicines and options to help him be his best. When he gets annoyed with me checking on him so often throughout the night, I hope he knows I do it to make sure he is ok. When we change his bed by adding a rail, I hope he knows I just want him to be safe and that I did everything I could to make it "cool". When I go to bed at night, I hope he knows that I pray that God will wake me if he needs me. I hope he knows that I never want him to be alone or scared when a seizure hits. When we take him to doctor's appointments that make him feel scared, I hope he knows that we only want to help him get better. When he wants to stay in a place that is full of lights or action but we leave early, I hope he knows that we only do it to help his body function at its best. When he wants to stay up late but has to go to bed, I hope he knows that I only do so because the doctor told us that lack of sleep would be a trigger for a seizure. When he begs to have chocolate because it's one of his favorite things and I have to say no, I hope he understands that I just want to protect him from things that keep him from doing his best. When he is hot at school or playing sports and I make him stop to cool down, I hope he sees it as something I do because I care about him. When he accomplishes a new task, I hope he understands that I know how hard he works for everything he does and that I admire his persistence. When he works hard and sticks with something, I hope he knows how proud I am of him. I also hope he knows that I understand that this isn't easy for him. When I push him to do better and have him do extra homework, I hope he understands that I just want to help him grow. When things don't seem fair and he feels sad, I hope he knows how much I want to sit down beside him and cry because I don't always think it's fair either. When he talks about When I grow up...., I hope he knows that I believe that he can do anything because God has big plans for his life. Most importantly, I hope he knows that he is loved more than he can imagine and that his life is truly a miracle of God. I hope he understands that everything I do is out of love for him even when it really isn't fair. Yes, epilepsy stinks, but I hope he knows that with God all things are possible.

Catching Up!!

I've thought about updating the blog several times but I always get interrupted! I'm going to give it my best shot to share some pictures that will catch you up with all of our happenings in January. 

Dizzle had a successful campout on the couch!


We decided it was time to sort Dizzle's Lego's!

After Pic

In all of his orneriness, Moose decided to take off his church shoes and put on his tennis shoes while Mommy was getting ready! Oh mom taught me to pick my battles!!

Some days it's just too hard to stay awake and eat!

Brother cuddles with the IPad

Moose is super proud that he learned to open the not so much!!

Sleepy boy!

I come into the kitchen and find that Moose has set the step stool up. The following conversation occurs:
Mommy Stop!

Need snack!

Got it!!

See! (magnet to open the cupboard)

Help me!

Dizzle is helping to take down Christmas lights!

Friday, January 9, 2015


It's been a cold week in Iowa for our first week back to school. We only had one full day of school this week. Next week could be pretty tough to get back into a routine! We have all kinds of fun during our extra time at home!
Moose trying on his snow boots before church on Sunday
Brotherly love in their matching shirts!
Dizzle was so excited for snow! He loves to shovel!
He decided it was maybe a little too cold to stay out very long!
Moose of course couldn't stay inside while the big boys were outside! I bundled him up to go help them shovel. When Daddy dragged him inside, he cried for about 10 minutes!
Moose got some new tubes to build with for Christmas from Pa. If you pair those up with the builder set from Auntie Meg then we have quite a construction worker!
Dizzle decided it was a good night to go exploring! He got all dressed and ready so brother followed in his footsteps and did the same. They tell me they are "camping" in the living room tonight!
While I did better taking pictures this week, there were a few events I missed! Nana took Dizzle to the skating rink. Moose and I tagged along for part of the time. Moose let me walk beside him for his first lap around. After that he told me to go away! The two boys skated round and round...Dizzle was so excited to use those new skates from Auntie Meg! Dizzle also started Upwards Basketball this week. He had his first practice and is excited to be on the Owls basketball team!
Enjoy your week!

Friday, January 2, 2015

Happy New Year!

This blog is a result of my desire to do a better job with two things this year...taking more pictures with my camera and writing down those funny moments with my boys that just make me shake my head. Most of the time these moments don't make me laugh at the moment but I'm hoping if I document them, I will laugh at them later! I hope you enjoy following our families adventures! Our new started off bright and early on Thursday morning. Moose has been skipping his afternoon nap and falling asleep for the night around 7. This means that he is up and ready to go around 5 a.m. Typically he comes in to our room but this time he decided to crawl in bed with his brother! Dizzle was happier to see him that I usually am!

We had a lot of cleaning and reorganizing to do to fit all of those awesome Christmas presents into the boy's rooms! Dizzle decided to help us clean under Moose's bed.

I will leave you with a few fun pictures from our Christmas!
Dizzle's New Bible

Moose's John Deere Tool Belt and Hat

Dizzle checking out the new Bounce Game

Christmas at Nana's (A very tired Moose)

Jason trying out Joshua's new maze while Soph models her new coat

Playing Minute to Win it Games...

Josh had a bit of a handicap - he had to throw left handed!

Is stretching this far legal?!?!

Happy New Year! May you feel God's blessing as you follow his will this year!